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Welcome to the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Common Data Element (CDE) Web Site


NINDS CDE Updates
February 2010
The NINDS CDE Team is working to post the CDE materials for Spinal Cord Injury and Traumatic Brain Injury. These CDE recommendations should be available very soon!
The NINDS CDE Web site contains neurology data standards and tools that are intended to help investigators and study staff to collect data with a “universal language” in their clinical studies.
The NINDS CDE Project first developed General CDEs that are commonly collected in all clinical studies regardless of type of study or therapeutic area, such as demographic information. The project has also developed CDEs for specific disease areas, including:
orange bullet Congenital Muscular Dystrophy (CMD)* orange bullet Huntington’s Disease (HD)* orange bullet Stroke
orange bullet Epilepsy orange bullet Parkinson’s Diseases (PD) orange bullet Traumatic Brain Injury (TBI)
orange bullet Frontotemporal Dementia (FTD)* orange bullet Spinal Cord Injury (SCI) orange bullet NINDS Genetics Repository (Coriell)
As CDEs for additional disease areas are developed they will be added to this Web site.
* The CDEs for these disease areas are in the initial phases of development and will not be available for some time.
The NINDS CDE Web site includes several portals (see menu on left):
orange bullet Standards - Start here to find the CDEs you can incorporate into your study. This portal is designed to help investigators and coordinators.
orange bullet Tools - More experienced users can use these tools to help assemble their data collection materials. This portal is designed to provide additional resources to those individuals with data management and/or database expertise.
orange bullet Data Archiving - Provides information about NINDS’ data archiving activities.
orange bullet Databases - Eventually will provide information and links about databases/repositories that include the NINDS CDEs.
The NINDS embarked upon and continues to support its CDE Project for a variety of important reasons. To learn more about the Project and its anticipated benefits, please visit the Project Overview.
This page was last updated on: January 06, 2010.


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